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Viewpoints_Samuel Gidding_Allison Jamison
VIEWPOINTS

Bringing Awareness to the Public: Samuel S. Gidding & Allison Jamison in an Enlightening Conversation with PharmaShots

Shots:  Homozygous Familial Hypercholesterolemia (HoFH) is a rare genetic condition that affects approximately 1 in 250,000 Americans. It is characterized by the presence of two genetic mutations that lead to extremely high levels of LDL cholesterol.  In this interview, Sam Gidding and Allison Jamison from the Family Heart Foundation/ emphasize the critical need for enhanced…
November 18, 2024

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INSIGHTS+

Disease of the Month – Fabry Disease

Shots:  Fabry disease is a rare inherited neurological disorder that affects the body's ability to break down lipids into smaller components  In this reprise of our Disease of the Month report, we bring an illuminating account of Fabry Disease with deep dive analysis of epidemiology, market size, disease management, available therapies, patient advocacy groups, and…
June 12, 2024

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Disease of the Month – Sjögren’s Syndrome
INSIGHTS+

Disease of the Month – Sjögren’s Syndrome

Shots:  A rare autoimmune condition, Sjögren’s Syndrome is characterized by dry mouth and eye. The condition affects 0.5 to 1% of the global population of which 90% of patients are women  In this reprise of our Disease of the Month report, we bring an illuminating account of Sjögren’s Syndrome with deep dive analysis of epidemiology, market size, disease management, available therapies, patient…
May 16, 2024

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VIEWPOINTS_Thirusha Lane_2024
VIEWPOINTS

Breaking the Barriers of hATTR Treatment: Thirusha Lane Shares her Insightful Thoughts with PharmaShots

Shots:  Often, patient care focuses solely on therapeutics, but with rare diseases like hATTR amyloidosis, integrating holistic care for patients is crucial to ensure patients fully live their lives  In an enlightening conversation with PharmaShots, Thirusha Lane shares the highlights of the recommendations developed by the international panel of patient advocates and HCPs for people…
January 22, 2024

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PharmaShots Interview Abdul Mullick, CEO at Kyowa Kirin Shares Insights on the Launch of a Virtual Exhibition to Highlight Issues of Rare Disease, X-linked Hypophosphataemia
VIEWPOINTS

PharmaShots Interview: Abdul Mullick, CEO at Kyowa Kirin Shares Insights on the Launch of a Virtual Exhibition to Highlight Issues of Rare Disease, X-linked Hypophosphataemia

Shots: Abdul spoke about the launch of a digital exhibition ‘Shine a light’ to raise awareness about rare diseases Abdul also emphasized the significance of this awareness campaign for the patients who were unaware of X-linked Hypophosphataemia(XLH) The interview provides a profound understanding of Kyowa Kirin's initiatives to help patients suffering from XLH Smriti: Can we…
July 27, 2022

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